Happy Anniversary to me! Bleh!

Posted by: Camilya

Tagged in: Untagged 

Camilya

This December 13th  is the 9th anniversary of my most major MS attack - the one that left me permanently disabled on my right side. I was diagnosed with Multiple Sclerosis the very next day. It seems my body has kicked off the festivities a bit early this year though.

I woke up yesterday and my left hand was tingly and numb like I slept on it wrong. By lunchtime, my whole left side was numb/tingly and I lost most of my strength. It was hard to stand up, walk, or raise my left hand. This is the suck. So far, this is not as aggresive an attack as I had 9 years ago, but it pisses me off just the same.

 I seem to have gotten a lot of strength back after sleeping last night - which I was quite pleasantly surprised about. I guess I will choose to be happy about that and not dwell on the fact that I still cant really feel anything on that side very well right now.

Yes, the threat of further disability is something we have to consider as a possibility everyday - but it is something that I never want to think about too much. And yet here it is. I was so hopeful that being part of this new drug study would shield me from the MS a bit. I dont even know if Im on the med or the placebo. I was hopeful though, but not so much right now. I am just sad and mad mostly. I have been here before and its not a good place to be.

Perhaps this is just MS's way of reminding me it's still here and active 9 years later. This is just all the more reason to keep up the fight for the needs of all ablegamers. I need something to keep my mind off of all of this so I believe Im going to go gaming for the rest of the afternoon as best as I can with my gimpy hands. I feel like blowing things up and killing orcs. That always makes me feel better. Gaming therapy - mmmmmm.

Comments (8)Add Comment
jbannick
John Bannick
December 07, 2008
Votes: +1
...

Camilya,

FWIW
You're doing a good thing by making AbleGamers work.
You're doing a good thing by showing that a person can persevere.
And it's just damn good to have you here.

Happy anniversary to all the good stuff.

John

Mark
Mark C. Barlet
December 08, 2008
Votes: +1
...

Oh hun. I was there smilies/sad.gif

I am sure you still have MANY years in front of you. You will stick around to make Mary's life a living hell, and you know you can't wait to see what I do when I grow up.

LOVE YOU ALWAYS CAM! Now get to work!

Steve
Steve Spohn
December 08, 2008
Votes: +1
...

Hey Cam,

Sometimes life sucks but you are still here to kick marks butt and that's why I like you.

Don't feel bad about what may come, just tried to think about all of the positive things in your life. It is Christmas time. You are not allowed to be said this time of year, it's a law somewhere. I'm sure of it!

Play some games, drink some hot chocolate, and make fun of Mark. That will make you feel better.

Ackrin
Tim Donaghy
December 09, 2008
Votes: +0
...

Congrats

Camilya
Stephanie Walker
December 11, 2008
Votes: +1
...

I appreciate the encouragement guys. Somedays its just hard - thats life - but I know it will get better. Thanks for reminding me. smilies/smiley.gif

Steve
Steve Spohn
December 13, 2008
Votes: +0
...

Did I mention feel free to take it out on Mark? smilies/cheesy.gif

0
A Draken
February 02, 2009
Votes: +0
...

I'm not here much (as evidenced by the date of my comment) and don't know you. I can say that my wife of 13(!) years was diagnosed w/MS some years before we met and is going through some similar trials. In her case the MS has caused her problems w/walking and neuralgia. Anyway, the point is that I do not love her any less, nor will the people who love you.

Peace and serenity,
-A.D.

Camilya
Stephanie Walker
February 03, 2009
Votes: +0
...

Actually A.D., you were here to post right on time. I needed to hear those words today more than you could have possibly known. Its no coincidence that you posted your thoughts today and I couldnt be more grateful.

I had to go back to my drug study doctor in Lubbock today and I found out things with my MS were even worse than I had thought.
So I had a 3 hour drive home to think about all he said. It just wasnt a good day for me.

But I will make it through no matter what life brings. Thanks for reminding me of all the love and support that I do have - especially on the days when things are difficult.

P.S. Grats on the 13 years! My hubby and I have been married 13 years too. Somedays it seems just like yesterday - other days it feels like 100 years. lol Buts its still good either way. smilies/smiley.gif

Thanks again for your timely, kind words.

Write comment
 
  smaller | bigger
 

security image
Write the displayed characters


busy